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List of Relevant Links
Click HERE
for a list of the following links with an explanation for each
Indiana Specific Resources
ARC of Indiana - http://arcind.org
Cleft Lip and Palate Association - (219) 426-1258
Early Childhood Center - http://www.iidc.indiana.edu/~ecc
Face to Face - (317) 257-9633
First Steps -
http://www.state.in.us/fssa/first_step/index.html
Indiana Department of Education Summer Camps for Kids
with Special Needs
http://www.doe.state.in.us/exceptional/speced/pdf/CampList2006.pdf
Indiana Family Helpline - http://www.in.gov/isdh/programs/mch/ifh.htm
Indiana Genetics Information Center -
http://genes-r-us.uthscsa.edu/resources/genetics/StatePages/Indiana.htm
Indiana Parent Information Network - http://www.ipin.org
Indiana Down Syndome Foundation - http://www.indianadsf.org
Indiana Resource Center for Autism - http://www.iidc.indiana.edu/~irca
INHealth Connect -
http://apps.nlm.nih.gov/medlineplus/local/indiana/homepage.cfm?areaid=13
Neofight - http://www.neofight.org/
2006 Sibshops in Indianapolis - www.ingc.info/conf-support/shipshops.html
Spina Bifida Association of Central Indiana
- (317) 592-1630
Trisomy Listening Connection (TLC) - (317) 889-1418
National Genetic Counseling Societies
American Board of Genetic Counselors - http://www.abgc.net
National Society of Genetic Counselors - http://www.nsgc.org
National Resources Each on a Variety of Conditions
eMedicine - http://www.emedicine.com
GeneTests / GeneReview - http://www.genetests.org
Genetics and Rare Conditions Site - http://www.kumc.edu/gec/support/
Genetic Disorders and Birth Defects Information Center -
http://geneinfo.medlib.iupui.edu/
March of Dimes -
http://www.marchofdimes.com
MedlinePLus (Genetics Page)-
http://www.nlm.nih.gov/medlineplus/geneticsbirthdefects.html
OMIM (Online Mendelian Inheritance in Man)-
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?db=OMIM
National Support Resources for Parents/Siblings
Genetic Alliance - http://geneticalliance.org
MUMS (National Parent-to-Parent Network) - http://www.netnet.net/mums/
Sibshops - http://www.thearc.org/siblingsupport/sibshops-about
Click HERE for Sibshops
in Indianapolis, IN
S.O.F.T.
- Support Organization For
Trisomy 13, 18, an Related Disorders - http://www.trisomy.org/
The
National Organization for Rare Disorders - http://www.rarediseases.org
Waiting with Love - http://www.erichad.com/wwl/
National Resources on Specific Conditions
Muscular Dystrophy Association - http://www.mdausa.org
Muscular Dystrophy Family Foundation - http://www.mdff.org
National Fragile X Foundation -
http://www.fragilex.org/html/home.shtml
National Marfan Foundation - http://marfan.org
Little People of America - http://www.lpaonline.org/
Little People of America District V (Midwest)-
http://www.geocities.com/patonly/lpadistrict5.html
National Grief and Loss Support Organizations
National SHARE Office -
http://www.nationalshareoffice.com
The Compassionate Friend, Inc. - http://www.compassionatefriends.org
Other
Center for Disease Control/Genomics and Disease Prevention -
http://www.cdc.gov/genomics/hugenet/
Clinical Trials.gov (provided by National Institutes of Health) -
http://clinicaltrials.gov/
ICD9 codes - http://icd9coding1.com/
CEU Option for Genetic Counselors - Click HERE
If your have useful links not listed
here, please send an email
with your updates
Page updated on-
May 15, 2008
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